COPD360social
Overview
Organization: COPD Foundation
Start Date: 11/2014
End Date: Ongoing
Primary Goal: Goal 1: Empower people with COPD, their families, and caregivers to recognize and reduce the burden of COPD.
Secondary Goal(s):
- Goal 2: Improve the prevention, diagnosis, treatment, and management of COPD by improving the quality of care delivered across the health care continuum.
Objective(s):
- Increase the effectiveness and variety of outreach communication campaigns and activities that utilize evidence-based approaches to raise awareness of COPD, particularly among those at high risk, and help people diagnosed with COPD manage the disease
- Expand opportunities to increase COPD awareness across the public-private spectrum
- Develop, disseminate, and maintain unified, multidisciplinary, and patient-centric national guidelines for COPD that are accessible and easy to follow
Collaboration: We worked alone
Activity Type: Patient education, Material or product, Research, Support group
Activity Description
COPD360social is designed to be the largest social media platform dedicated specifically to the COPD community. All stakeholders, including patients, caregivers, clinicians, researchers, and other advocates are able to meet on common ground and equal footing. This promotes robust discussion and rapid dissemination of important information such as research results, product recalls, and peer support.Audience
General Audience: Patients, Caregivers or family members, At-risk populations, General Public, Health professionals, Researchers
Focused Audience: n/a
Program Reach: National
Type of Area: N/A
Setting: Online
Cost and Funding Sources
Impact Analysis
Over 55,000 members have joined so far. Approximately 55% identify themselves as a COPD patient, 26% as a medical affiliate/health care professional, 9% as a family member, and the remainder as either a caregiver or friend. COPD360social provides community members with a comfortable venue to share thoughts and ideas, ask questions, start discussions, read and comment on blogs and communicate with peers, thought leaders and community managers.As with many social media networks, users can like and comment on other user's activity as well as connecting via the "friend" function. This facilitates robust discussions and the development of a sense of community among the user base.Advice or Lessons Learned
Moderation is essential to creating a healthy, sustainable community. In addition, we encourage members of our clinical education team to monitor questions and comments to ensure that evidence-based answers are being provided in addition to the peer support.Related Links
Contact Information
COPD Foundation
Vice President of Patient Experience, COPD360
Miami
Florida