STRIVE
Overview
Organization: Emphysema Foundation of America
Start Date: 09/2021
End Date: Ongoing
Primary Goal: Goal 1: Empower people with COPD, their families, and caregivers to recognize and reduce the burden of COPD.
Secondary Goal(s):
- Goal 2: Improve the prevention, diagnosis, treatment, and management of COPD by improving the quality of care delivered across the health care continuum.
- Goal 4: Increase and sustain research to better understand the prevention, pathogenesis, diagnosis, treatment, and management of COPD.
Objective(s):
- Increase public awareness of the risk factors and symptoms of COPD so that earlier diagnosis of symptomatic individuals becomes the norm
- Develop a unified, multidisciplinary educational curriculum for health care professionals, including primary health care providers, using harmonized clinical practice guidelines
- Help expand, coordinate, and optimize COPD research efforts
- Promote research that can lead to strategies that help prevent the onset and progression of COPD and improve the quality of COPD care and management
Collaboration: Universal Community Health Center
California Smoker's Helpline by the University of California San Diego
Northeast Valley Health Corporation
Garfield Health Center
Activity Type: Patient education, Research, Support group
Activity Description
The Emphysema Foundation of America's STRIVE program is a peer support group for individuals with diagnosed Chronic Obstructive Pulmonary Disease (COPD). Participants are provided with tools and resources to improve disease self-management. This need is especially great among underserved populations who face multiple challenges when trying to understand and manage their chronic lung disease. This program is based on the theory of planned behavior that links beliefs to behavior control and intention.Program's Goal:
Participants to gain greater confidence in COPD self-management.
Participants to experience improved daily living and greater quality of life.
Participants to report maintaining a regular habit of using a COPD action plan and symptom checker and updated medication list.
Participants will have improved communication with the provider and healthcare team.
Audience
General Audience: Patients, Caregivers or family members
Focused Audience: Hispanic/Latino, Asian or Pacific Islander, African American/Black, Caucasian/White, Men, Women
Program Reach: Regional, State: California: West
Type of Area: Urban, Suburban, Rural
Setting: Community, Health care, Online
Cost and Funding Sources
The total project cost is estimated to be $51,092. Funding is made possible by NHLBI's Learn More Breathe Better program and in-kind donations.Impact Analysis
EFA will conduct three STRIVE workshop series that include 20 participants during the 2021-2022 LMBB grant period. EFA will share reports at the end of the LMBB grant period.Advice or Lessons Learned
The program should be culturally tailored to fit the demographics it seeks to reach. Having someone from the community that can provide the workshops is a plus. It helps build trust between the provider and the participant.Related Links
Contact Information
Emphysema Foundation of America
Senior Manager of Programs & Research
LOS ANGELES
California