Improving Shared Decision Making in Lung Disease
Overview
Organization: National Heart, Lung, and Blood Institute
Start Date: 08/2021
End Date: 07/2026
Primary Goal: Goal 4: Increase and sustain research to better understand the prevention, pathogenesis, diagnosis, treatment, and management of COPD.
Secondary Goal(s):
Objective(s):
- Help expand, coordinate, and optimize COPD research efforts
- Promote research that can lead to strategies that help prevent the onset and progression of COPD and improve the quality of COPD care and management
Collaboration: University of Pennsylvania
Activity Type: Research
Activity Description
This NHLBI-funded research activity is being carried out by University of Pennsylvania.Over 16 million older Americans living with an incurable lung disease called chronic obstructive pulmonary disease report high levels of distress and poor quality of life. These patients and their informal caregivers make decisions based on the patients’ values and goals, relying on their expectations for the patient’s future health. This longitudinal project will provide critical information about the origins and impact of patients’ and caregivers’ expectations for patients’ future physical and emotional symptoms in order to improve shared decision making and quality of life for these patients and caregivers.
Audience
General Audience: Health professionals, Researchers
Focused Audience: n/a
Program Reach: National
Type of Area: N/A
Setting: Workplace
Cost and Funding Sources
This activity was funded through the National Heart, Lung, and Blood Institute.Impact Analysis
Results of program are in progressAdvice or Lessons Learned
in processContact Information
National Heart, Lung, and Blood Institute
Program Analyst
Bethesda
Maryland