COPD National Action Plan:
Community Action Tool
Discover the progress the COPD community has made toward implementing the goals and objectives in the COPD National Action Plan.

Living Better Together COPD Week

Overview

Organization: Respiratory Health Association
Start Date: 11/2021
End Date: 11/2021
Primary Goal: Goal 1: Empower people with COPD, their families, and caregivers to recognize and reduce the burden of COPD.
Secondary Goal(s):
Objective(s):
Collaboration: We worked alone
Activity Type: Patient education, Event

Activity Description

As the COVID-19 pandemic continued into the last quarter of 2021, RHA staff decided to postpone the traditional in-person COPD conference to protect the health and safety of the COPD community. In its place, staff created Living Better Together COPD Week, as a way to virtually observe COPD Awareness Month and provide people living with COPD and their caregivers with relevant information. To spread awareness about COPD, staff developed a selection of educational videos, live Q&A webinar with a pulmonologist, and downloadable COPD packet, called "Living Better With COPD: A Guide for You." Educational video topics and presenters included:
- Live Q&A webinar on update on the relationship between COVID-19 and COPD, moderated by Dr. Ravi Kalhan, and led by Dr. Khalilah Gates, both from Northwestern University
- Pulmonary Rehab at Home led by Stroger Hospital respiratory therapist, Gail Harris
- COPD and Sleep led by Rush University Medical Center physician, Dr. James Herdegen
- Self-care for COPD Caregivers led by Northwest Community Hospital psychologist Dr. Harvey Wolf

Respiratory Health Association also released a special edition of its Inspiration Newsletter as a part of this initiative.

Audience

General Audience: Patients, Caregivers or family members, General public
Focused Audience: n/a
Program Reach: National
Type of Area: N/A
Setting: Online

Cost and Funding Sources

Living Better Together Week was sponsored by Integrated Respiratory Solutions and Olympus. Sponsorship income totaled $6,000.

Impact Analysis

For the live Q&A webinar, there were 17 people who joined the live webinar, and 45 people who have viewed the recording on Facebook.

For the pre-recorded educational videos, RHA has received a total of 271 video views, with the following breakdown:
- Pulmonary Rehab at Home Video: 98 views on YouTube, 54 views on Facebook
- COPD and Sleep: 44 views on YouTube
- Self-care for COPD Caregivers: 42 views on YouTube, 33 views on Facebook

RHA has yet to receive the number of times the Living Better Together: A Guide for You packet has been downloaded.

Advice or Lessons Learned

In 2020, RHA also led an effort to release virtual videos for COPD Awareness Month, since its in-person Living Better Together COPD Conference had to be cancelled due to the COVID-19 pandemic. RHA had conducted weekly live webinars that lower attendance than expected. In 2021, we decided to condense all the activities into one week, and started promoting these activities about a month before the first activity started, which greatly increased participation. We also only conducted one live webinar, and released three pre-recorded videos, instead of doing all live webinars.

Contact Information

Hannah Mestyanek
Respiratory Health Association
Senior Program Coordinator
Chicago
Illinois